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July 16 Recovery room nurse Breanne Hagihara explains to Ana Watson that she will have to use extra care for the next six weeks as Preston’s incision for his gastrostomy tube heals and the permanent button can be put in at Children’s Hospital in Aurora. Arthritis Things are looking up at the RV park They started with a drug called Depakote when Preston was 3 months old. But the seizures continued — as did the new treatments: Klonopin and Felbatol and Keppra. Zonegran and Topamax and Diamox and Banzel. Vitamin infusions. A special high-fat diet. An implanted electrical nerve stimulator. There were two other drugs not yet fully approved by the federal government that cost hundreds of dollars a month. There was another that has also been suggested for use in executions. The migration to Colorado by families of sick children seeking medical marijuana is fueled by hope, not science. Little is known about the treatment’s effects, and researchers suggest that some parents see progress because they’re desperate to see it. The only hope left Mapping Preston’s seizures Toddler Seizures Treated with Medical Marijuana This time, she walks to him without a smile. She leads him into the bathroom and pulls down his diaper. She muscles him close. While doctors at Children’s don’t exactly want their patients on CBD, they are eager to find out what it’s doing. Knupp told Ana that doctors at the hospital now recommend all patients have both an EEG and a bloodwork exam prior to starting CBD. They would like to run follow-up tests every three or four months. Related: Researchers bemoan roadblocks to medical marijuana research Combats psychosis disorders Finally dragging Preston from bed, Ana sat him in his skull-and-crossbones pajamas in front of the television and turned on a video of Barney the dinosaur. Sydney walked by and scrunched up her face. She had already outgrown Barney. Preston helps “Paw Paw” Don Raynor Preston watches as Ana and her mother argue While Preston played later in the backyard August sunshine, his eyes seemed to roar. “Are you seeing any results?” Jason asks. “Help,” Ana writes in a Facebook message to the community of parents who have tried the same treatment. “He is spitting it out and gagging. Can I mix it with food, give rectal? Any suggestions?????” “We have a special squirt-squirt we need to do, OK? You need to be a big boy,” she said.
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